Does Anyone Know How To Figure This Out?

TRIGGER WARNING: Mentions of self-harm, suicide, and depression. Dark humour is used. Reader discretion is advised!

"Yes, you've been broken, but see it as a chance to rebuild yourself as whatever you want." - J.StΕ™elou

 

Okay, so here's a question for you . . . Who are you? Who the heck are we? I'm serious. Who actually are we? It's been something that I've been made to think about recently and it's been driving me nuts! πŸ˜‚ And I know the common response people give are that we're what we love, the things we enjoy, the people we love, we're our passions, our goals, our hopes, the communities we belong to, and so much more. But does anyone else feel like that there may be something more missing? I mean, there's no label or title to give ourselves is there? That aren't based off our profession or job? If you're a teacher, then you're a "teacher", that's your title. If you're a nurse, you're a "nurse", that's another title. But as an individual how do you describe and explain yourself? What do you title yourself? Introvert? Extravert? Omnivert? Loud? Quiet? Confident? Shy? These are all adjectives, not necessarily titles so who are we? Is there even just one word we can title and call ourselves (and before any of you smarty's comment, I don't mean our names! πŸ˜πŸ˜‚)  I mean, who am I? I've been fighting a severe, debilitating illness 24/7 for the past 4/5 years of my life so who the heck am I, besides a vessel for my illness? I know that I'm not just that, I know and feel there's more to me but what or who is that? I know I want to be better and live a life not centred around my OCD but what does that look like exactly? Besides me having more control and autonomy over my life, body, and choices I make, that is! πŸ˜‚

I recently had a therapy appointment with my main port of call therapist and we talked about implementing more good things into my life to help push out the bad things (the OCD) so that I can spend more time doing something (or anything really) that aren't my compulsions and basic survival tasks. So he asked me (and not for the first time since we started working together), "What do you want to do once the OCD isn't so prevalent in your life?" Now my typical answer is that I want to be able to do basic life skills again, to potter around the house helping my Mum so she doesn't have to do everything. I want to be able to cook, clean, do the dishes, do the laundry because I do actually enjoy doing it, it's rhythmic and somewhat calming. But this response is never fully accepted because they're seen as necessary life skills, they're not goals or things to drive us which yes, I get where he's coming from, if I had to choose between doing something I love all day and doing chores, I'd probably choose doing something I love but still, I didn't know what the answer was that he wanted because to me, those goals make sense for me to work towards but not to him. So I'm sat there like, "Okay . . . How the heck am I supposed to know then?!" I know he's talking about passions, dreams, career ideas and such but for someone who for the past 4/5 years has only been thinking about nothing other than simply surviving through the 24 hours in front of her in one piece, I had no idea what to say, it's not something I've been able to think about much.

What I want out of life has been a question I've been debating for a few years now, especially since the severity of my OCD kicked up a to a whole new level (an understatement!
πŸ˜‚). When therapists have asked, "Who is Emily?" and "What do you like to do in your downtime?", it's always stumped me. It gets me questioning . . . Who the heck am I? Because people always advise you to look at your personality, hobbies, interests and such to help decide what you want to do in life. I mean, when I was younger, I was a good, studious student, who had a close group of friends, I was a good daughter, good granddaughter, I didn't poke a toe out of place (I mean I was also secretly depressed, burning out, self harming, suicidal, and had undiagnosed Autism but hey! I got good grades and helped my loved ones when I could sooo . . . There's both good and bad? 🀷‍♀️πŸ˜‚). But now? After going through the suffering and the pain that I've felt due to my health? I don't know if I know. Who am I besides the OCD? It's literally corroded the part of me that is me. What's scary is that I'm not sure what plans I have for the future that doesn't include me somehow taking a magical pill or cure for OCD because when I do picture that future, the OCD isn’t there. πŸ˜‚ What do you do when you feel like there's nothing or at the very least, not much left of you but you've still got your whole life ahead of you?

I mean, this is a philosophical question that has pondered every single human on this planet, all the great thinkers and brainiacs have tried to answer that question, "Who Are We?" and there is no one answer so how the heck does my therapist expect me to know?!
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What do I want to do? I feel like my younger self emerges and says to look into going back to university or going into some form of education to get more qualifications. The hurting part of me confusedly asks, there's a future where the OCD isn't so prevalent? And then there's "me" me, who's sat there in the room with my therapist, having no fricking clue, besides what I think is expected of me, because all I feel still is hurt and scared by what I've been through.


Do I want to go back to uni? If so, what do I study? Pick back up with Sociology? Or study something different? Like Drama, or Psychology, or Teaching? Do I go for full time or part time? Live in accommodation or live at home? What about my age? There's also the part of me that isn't sure how to navigate life as someone who's Autistic because I've never been in a situation like uni or work with the known knowledge that I have Autism and that it isn't just a mental disorder, it's an actual disability. I know I've technically been Autistic all my life, when I've been in those situations before but now I do know, I don't know how or what to advocate for myself and no professional has helped me or seems to be willing to help or point me in the right direction to know how to do this. What's also stumping me about why my therapist is pushing me on this is because I'm still struggling to do some basic stuff like going outside, getting changed without the use of gloves or washing my hands and other things so how the heck am I supposed to be getting myself to an adult education course? It also scares me to answer what I want to do when the OCD isn't prevalent because I'm not sure what I want so what if I answer wrong? What if I make the wrong decision? Especially as the only goal I can agree on is being free to cook, clean, wash up and be "normal" again? What would you do? Have you felt this confused and lost before?

So, since my therapist didn't take on board my original idea of wanting to be able to do household chores again which, to me, essentially boils down to me gaining my freedom back, I began questioning and evaluating everything. But then after a long, heartfelt, in-depth conversation with my Mum, it hit me (well, us). And it got me so excited about what this means for me now in my recovery and opened my eyes so much that I wanted to share with you what we discovered!

Everyone goes through a transition period one way or another from kid to adult, which typically happens between the ages of 18 - 21 years. Where it's expected or can be seen as a societal norm to move away from your family to university and then continue to live independently from them on for the rest of your life (which when writing it, sounds really daunting!
πŸ˜³πŸ˜‚). You take on the roles that you may not have needed to before if you were privileged enough to not have to do so, to start paying bills, keeping track of money, doing chores around the home, managing your own schedule, work etc. Even if you don't go to university, you start to come across and be seen as more of an adult than a child within your family and society when in reality, it wasn't long before you had to ask whether you could remove your blazer or not, or you were made to put your hand up to simply ask a question, or were even given a detention or sent to isolation for having the wrong shoes, or if and how many piercings you had (which if you think has something to do with someone's professionalism then you need to have a complete rethink but that's something to discuss another time! πŸ˜‚) . . . But now we're expected to instantly know how to exist as an adult and be able to just get on with it like we've been trained for it but we haven't. We were in a system with a set, rigid schedule, our days and time were accounted for 5 days a week, every week (except holidays) where we were taught certain subjects and taught how to pass them, not how to pass as a functioning adult in society!

But for me, I somewhat missed that transition period from kid to adult. From 18 to now (23), I've only been in survival mode, existing, I've been constantly battling and being ill. I went to university with the assumption that the independence and free reign would help subside the OCD but it didn't, it was still there on top of the burn-out I felt from GCSE's and A Levels. So I had to drop out and come back home, where from 2019 onwards, I was in a constant battle for my life. That's all I've been thinking about for 4/5 years now, not what I want to do with my life, not goals and aspirations but simply staying alive. And now, once again, I'm expected to know what I want to do and aim for in my life when I've been very preoccupied with something else entirely up until now.

So what do I want from life? I'm not sure. Before I became so ill, I was still considered a kid, a kid who could do things that her adult self now struggles to do. She could cook, clean, live her life, go shopping, go outside, help out with anything, meet up with friends. So when I'm asked, "What do you want to do once the OCD isn't so prevalent in your life?", I say I want to be able to do household chores again because that's my last saved point (like in a video game). I know I can do that, also because that's the last time I remember being "me". If I was to add any more stuff into this place in life that I'm in, it wouldn't mix well with my current situation. Simply just trying to push out the bad stuff by adding good stuff is just ignoring the problem. The OCD, it's pain, and problems are still going to be there. Trying to add and do more good stuff in life whilst I'm still struggling is only going to pile on top of one another and fill up until it explodes because of me trying to handle doing both the good stuff and surviving the bad.

Also, I don't know what life looks like as an adult without suffering from a severe mental illness plus the added late diagnosis of Autism, as well as healing my inner child. To be able to figure out who I want to be and what I want to do, I need to get rid of and help remove or dilute the bad stuff (the OCD). Then, once I'm comfortable at my last saved point, then I can figure out life and catch up to those who did get to go through that transition from kid to adult without being severely mentally ill.

I suppose that this creates a block for me to build myself on again, a new, improved and more self-aware version of who I am, my newfound strengths, and my weaknesses which are okay to have!

So who am I? I'm someone who has somehow, amazingly fought and survived a battle with an illness that wants nothing more than to control my life and kill me. I'm someone who's missed out on life experiences because I was busy trying to stay alive, and that's okay to say has happened; I didn't ask for it, I didn't want it but I made it through, I'm making it through. I'm someone who doesn't back down from a fight from her own mind, life, and those who aren't helping when they should be. I'm someone who advocates for a little more compassion, kindness, patience, and acceptance for people and for within ourselves. I may not know what I want to do with my life or "who I want to be when I grow up" but I will know once I'm able to. Considering what I've been up against, fought through, and survived? I think I'm doing pretty damn amazing! And you are too, no matter what you're up against in life, whether it's health struggles, work problems, family dilemmas, friendship issues, you are capable and so much more stronger than you know. You can and will make it through the tough times you find yourself in life, you're stronger than them. Life is tough but so are you!
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I do know that whenever and whatever I figure out and decide what to do in my life, it's a continuous journey and that decision may not be the actual end destination and that's okay! I saw an image on Instagram explaining how life and figuring out what you want to do and who you want to be is like walking on stepping stones. You're on one stone, doing something that you want to do and then that leads you to something else that takes your interest so you step onto the next stone and so on where you move through life until you find the place that makes you feel the most happiest and contempt. I really believe in this way of thinking and I think that it's beautiful and not as daunting and threatening as, "You need to know who you are, what you want to do with your life, what career you will pursue, end of!" way of thinking that's so often pushed onto us.

Who you are changes throughout life and probably once you do get to know yourself, it's already changed someway again. Like the famous quote says, "Change is the only constant" , (Heraclitus).

So, does anyone know how to figure this out? Who we are? What we should do with our lives? It would be great if we did but I guess we figure it out as we go along. But one thing I do know is that there may be no one and right answer to who we are because we're the first one of ourselves individually that has existed before so how are we to know? Our paths are different, we are different. But one thing that is true and connects us all is that whatever you decide to do will always lead you to where you're meant to be. Even though I know it feels like at times that there's too many questions and not enough answers, leading us to ask, "Hey Universe, Did You Forget About Me?"

Thank you for reading - all the best!
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Emily
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